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Our work focuses on supporting those affected by thalassemia and their relatives, promoting structural prevention and raising public awareness of this genetic disorder.

An estimated 4.6 million children and young people suffer from thalassemia worldwide (including Germany), a figure that demonstrates a clear social, cultural and political need for sustained and wide-ranging forms of assistance.

Here, you can find out more about the disorder of thalassemia, get an insight into our work and our concerns and discover how you can help in easy and practical terms.

Donation information from the Executive Board

In the spirit of the transparency requested by both sides on the subject of donors and donations, we inform interested parties, friends and supporters that bluebird bio (Switzerland) GmbH has supported our work for the years 2020 to 2022 with a donation. The amount is EUR 5,400. This is EUR 1,800 per year.

The donated money may only be used for the statutory purposes of the association. Our statutes are published on this website.

Thalassämiehilfe ohne Grenzen e. V. (thalassemia help without borders) thanks for the experienced appreciation

bluebird bio Inc. tells about itself: ″We are developing therapies that have the potential to transform the lives of people with severe genetic and rare diseases and cancer. Our current platform is just the beginning. We are committed to continuing to develop gene therapy technologies and capabilities that have broad potential beyond the core indications.″

More information:

Juergen M. Beith, Chairman - January 2020